Looking for Research Participants on Telling About Sensory Processing Disorder

Are you a parent or caregiver of a child with diagnosed or suspected sensory processing disorder or “sensory issues”? Do you write about sensory processing disorder on public websites (e.g, The Mighty, Scary Mommy, Huffington Post, Mommyish, Babble, Baby Center Blog), your personal blog, or on social media?

If so, I would like to invite you to participate in a research study on talking about sensory processing disorder conducted by Stephanie Medley-Rath, a sociologist at Indiana University Kokomo. You are invited to complete a survey and participate in a private, online focus group on Facebook. This research explores how people make the invisible visible. In particular, I aim to learn how parents, caregivers, and individuals disclose invisible conditions (i.e., sensory processing disorder) in various settings. I intend to have participants describe how they make their child’s invisible condition visible to their child’s teachers, doctors, parents of friends, neighbors, other family, among others. The purpose of this study is to examine the content (i.e., what) and the process (i.e., how) of narratives about sensory processing disorder.

If you would like to participate, please contact Stephanie Medley-Rath at smedleyr@iuk.edu. I will then send you an email with more details about your participation, an attachment of the informed consent document for your review, and a link to the survey to begin your participation. Thank you!